I spoke with Andy’s consultant today. There’s a wee bit of good news for a change. Or at least not bad news. Last weekend she wasn’t sure whether he’d survive the week, but over the course of this week he appears to have stabilised, even though at a very low level. She thinks he’s strong enough to be transferred to a supported bed in a local nursing home. It’s still a part of the NHS, and he’ll still be under the consultant’s care, but he’ll have a private room and peace and privacy.
The worrying news is that he is developing swallowing difficulties. It a common symptom in advanced vascular dementia. His speech is affected now too. He’s had severe word finding problems for a long time, but the words he could find were clearly articulated – but now they’re slurred and he’s having trouble coordinating the muscles of speech and language.
We’re waiting for a bed to become available, and all going well he’ll be transferred next week. The prognosis remains very poor. He may have a few weeks left instead of a few days. It’s little comfort to take – but I’m happy that he will survive to see the result of the referendum. I know he’d like to see that. He’s lying in his hospital bed and willing a Yes vote. He’s also still very conscious of the issues around selling our house in Spain and buying this flat, and I’m sure he’s clinging on until the sale is completed.
Meanwhile I need to get my head around thinking of life after caring. I’ll be stopping my claim for Carers Allowance, and will need to find work. I gave up work to look after Andy, and since I won’t inherit his pensions once he’s gone I’ll have no income. I need to use this time he’s given me with his last bit of strength in order to sort myself out. I haven’t even begun to think about “afterwards”, but it has to be faced up to.
Thank you so much to everyone who left words of support and love on the previous post. It’s an immense comfort and you give me such strength to go on.
No more updates today. I’ve been a bit emotionally fried the past couple of days and need a wee bit of time to relax and unwind. I’ve got a load of sci-fi to watch. (Defiance. I love it. It’s got great female characters in it. And aliens and spaceships. What’s not to like?)
Normal No-mockery service will be resumed on Saturday.